This memoir is about a family’s journey from the dark side of despair to the bright side of the sun. Mommy… Move The Sun is about overcoming struggles that range from terrifying to humorous, as they raised their daughter with severe disabilities, while learning many life lessons along the way.
This book was written with tears, laughter, and true stubborn grit. This unique and compelling story offers hope for other families experiencing the challenges of raising a disabled child. Nikki was diagnosed with the rare disease Tuberous Sclerosis before she was born. She is so much more than the challenging diagnosis she has been given! Now at 28 years old, she is our life teacher. She has taught us not to let anyone take hope away, and to never give up.
The author, Nikki’s mother Jeanine Gould, seeks to provide her severely disabled daughter, whose name means God’s angel, with the individualized care that she needs to lead a safe and happy life.
Nourished by her family’s love and support, Nikki survives well beyond doctors’ dismal expectations, but as she ages her family faces many challenges. From her changing needs to a sometimes callous and disrespectful medical system, a broken insurance system, and a very limited educational system.
At times, Jeanine marvels at her daughter’s profound uniqueness, her humor, and uncomplicated love. At times it seems that raising her will always be a series of dramatic battles for survival. Through trials and triumphs, Jeanie achieves many of her goals for Nikki through vigilant involvement in her life and through creative problem solving. Thus, their family motto, “We don’t do normal!”
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